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Dr Chris video for LDN

This is a discussion on Dr Chris video for LDN within the Coffee Room forums, part of the The House of Commons category; LDNNow is an organisation dedicated to raising awareness of Low Dose Naltrexone and the issue of out of patent drugs ...

  1. #1
    bwmbagus Guest

    Dr Chris video for LDN

    LDNNow is an organisation dedicated to raising awareness of Low Dose Naltrexone and the issue of out of patent drugs which find new uses.
    LDN in particular because it is showing effectiveness in clinical use at controlling many of the toughest diseases we face, such as Cancers, auto inmmune disorders such as MS, Rheumatoid Arthritis, Crohns and Ulcerative Colitis, Psoriasis and allergies, infertility and many more besides.
    For more information please visit YouTube - Dr Chris Steele, MBE talks about Low Dose Naltrexone, LDN and then go to the ldnnow web site and select the petition link to support our petition to trial and research this therapy.
    Politically, out of patent drugs that find new uses face a hard struggle for recognition, even though the government sponsors the NIHR Health Technology Assessment programme specifically to research therapies that cannot find alternate funding. LDN has been known qabout for 30 years, but much of the science that supports it has only been confirmed int he last ten years or so. However, around 100,000 people use it worlwide and the reports of it's effectiveness from the doctors prescribing it are very good indeed. The time is now long overdue to investigate this therapyt so everyone can benefit from it on the NHS.
    More still, the drug is very low cost, at around 50p to £1 a day. When we spend billions on drugs for these diseases, the savings are immense if we use it.
    It is also safe, having been trialled for it's original use of treating opiate addiction and is prescribable to pregnant mothers for this use in high doses. So, if it works, and it does for me with my MS, it is a true "First Do No Harm" therapy which should be used first. It can also be prescribed, like most Ms drugs are, as an off-label therapy, and over 300 GP's in the UK do prescribe it to over 3000 patients so far. the time to attend to this issue is overdue.
    Only political attention can break this log jam to out of patent drugs getting to save our lives.

  2. #2
    Johnd is offline Junior Member

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    Thanks for this post bwmbagus

    My wife is using LDN to fight Stage iv lung cancer and she is winning. 2 to 4 months to live 13 months ago and heading for remission now

    Johnd

  3. #3
    Jayne Crocker is offline Junior Member

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    Thank you for raising this important therapy on this political forum. The petition is to urge the Govt to take the necessary steps to trial this drug and achieve the licences necesry to make this drug available on the NHS. Currently, this lack of a licence is preventing many GPs from having the confidence to prescribe it. Let's change this!!

    Due to the lack of interest by the normal bodies who conduct trials - the drug companies - without political intervention we will probably never see this drug trialled. Therefore we need everyone's help in this matter to overcome the apathy which is standing in the way so please do support the petition and help raise awareness of it.

    It's helped many peoples lives the world over and we want our Goverment to fund these trials which will save them billions of pounds when Drs can feel confident to prescribe it on the NHS. Many thanks!
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  4. #4
    Johnd is offline Junior Member

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    Jayne

    Did you know Low Dose Naltrexone is a therapy which has been in use for 25 years in the treatment of MS, HIV/AIDS, Cancer, Fibromyalgia, Crohn‟s Disease, Rheumatoid Arthritis and many more conditions besides. A fuller list can be found on the LDNNow website. This versatility was discovered in clinical use by Dr Bihari after working with scientist Dr Zagon. It was Dr Zagon in 1979, who discovered that Naltrexone, taken once a day in low dosage, produced a surge in endorphin production of several hundred percent. Endorphins perform many functions in the body, one of which is to restore a healthy immune system and modulate it, allowing it to start working properly again. Endorphins also multiply cells that repair damage and act to remove free radicals. One of them, called met-5-enkephalin, can attach to cancer cells and inhibit them which stops a tumour from growing and allows the immune system to attack it. This theory is supported by the clinical success that has been observed. Cancers do stop growing, shrink and in some cases disappear, but not always. Sometimes other techniques must be used in addition to complete the job.

    The Debate

    Twenty five years is a long time for a successful drug therapy to be ignored by health services - so why?
    Essentially, Naltrexone is a very low cost generic drug. Any company funding trials (costing millions of pounds) will be unable to secure exclusive right to manufacture. Cheap competition would cause them to lose their money, so this and all other generic drugs get shelved for further trials once the patent is due to expire. We expend huge effort and establish charities to defeat these chronic diseases but we now know that Low Dose Naltrexone saves lives and reduces disability! We should be taking this option very seriously - as well as saving our sick it can also save our economy. The drugs currently used to treat these diseases are very expensive and often dangerous. In medicine there is a rule, „First do no harm‟. Naltrexone is safe with very few, short term side effects. It is even prescribed, in high doses, for pregnant mothers to treat addiction with no known risks to mother or foetus - so low dose usage must be risk free.

    The Solution

    We need to find a way for generic drugs - which find new uses and acquire proven track records in clinical use - to be licensed. Currently this means they must either be prescribable off license or they must be
    trialled. LDN can be prescribed off license for these conditions, but this is discouraged. Many drugs in use for many of these diseases are also not trialled for those uses, but they are allowed. However, using LDN for autoimmune conditions does not fit the standard protocol for treatment. There is only one way to end this controversy - to trial LDN properly. There are plenty of doctors now with good experience using LDN who can design a good trial, we just need the government to provide the funding. Nobody else has done or will do, but the Irish government stands to reap huge savings in the Health budget from the use of LDN. Therefore we are petitioning the government to fund the trials for Low Dose Naltrexone so that we can confirm, or otherwise, the clinical results being achieved with so many of our most dreaded illnesses. Please sign the petition and let‟s get the government to resolve what is a tragedy of modern medicine where high tech business goals outweigh the needs of health.
    Save our Sick, Save our Economy, Now! Go to http://www.ldnnow.com and sign the petition

    John

  5. #5
    Jayne Crocker is offline Junior Member

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    I myself take it for Ulcerative Colitis, my partner SPMS. I just wish I had heard about this effective therapy when my mother was diagnosed with brain cancer four years ago!

    Thanks for the useful information John, I agree with all you have written.

    Cheers for that!
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  6. #6
    Midas's Avatar
    Midas is offline Chancellor

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    Can I take this opportunity to say a collective hello and welcome to the Politics Forum to the several new members who've posted in this thread.

    Before anything else can I make a couple of quick points about posting in the forum. If you haven't read the rules yet, please do; you can find them here. Knowing what’s appropriate and what isn’t can save everyone a great deal of hassle! You might also find the Guide to Good Posting useful. Also please respect other people’s views; they mightn’t be the same as yours but that doesn’t necessarily mean they’re wrong, just different.

    If you need help with anything at all, feel free to contact me, or one of the other moderators, via a personal message; details can be found here.

    Perhaps you’d care to introduce yourselves, which you can do here, or tell us a little bit more about yourselves here.

    An interesting thread this is, all new as far as I'm concerned, but I'm sure you'll be pleased to know that already there are at least two new signatures on the petition as a result.
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    "High taxes don't redistribute wealth; they redistribute taxpayers" -- Arthur Laffer

  7. #7
    Johnd is offline Junior Member

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    Thanks Midas

    Will do in the morning its been a long day for all

    John
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  8. #8
    Celia123 Guest
    I too have been taking LDN for cancer, have been on it now nearly two years, told I would die within 6 - 12 months over three years ago, still here!!! Helloooo, why is this drug not trialled by the govt since they are complaining so much about the cost of health care in this country? Do they care more about health or more about big pharma? Maybe they need a few of us to pop off needlessly to equal the status quo,
    common sense has flown the coop so it seems........
    Last edited by Celia123; 09-09-2009 at 10:58 AM. Reason: misspelling
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  9. #9
    Jayne Crocker is offline Junior Member

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    Quote Originally Posted by Midas View Post
    Can I take this opportunity to say a collective hello and welcome to the Politics Forum to the several new members who've posted in this thread.

    Before anything else can I make a couple of quick points about posting in the forum. If you haven't read the rules yet, please do; you can find them here. Knowing what’s appropriate and what isn’t can save everyone a great deal of hassle! You might also find the Guide to Good Posting useful. Also please respect other people’s views; they mightn’t be the same as yours but that doesn’t necessarily mean they’re wrong, just different.

    If you need help with anything at all, feel free to contact me, or one of the other moderators, via a personal message; details can be found here.

    Perhaps you’d care to introduce yourselves, which you can do here, or tell us a little bit more about yourselves here.

    An interesting thread this is, all new as far as I'm concerned, but I'm sure you'll be pleased to know that already there are at least two new signatures on the petition as a result.

    Thanks Midas, I have posted more about us in the 'bit about yourself' section. This really is a worthwhile campaign and with Dr Chris's backing we're hoping this will gain more media awareness about this lost cost effective drug and any suggestions from your viewers as to how else we can go about this would be most welcome!
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  10. #10
    Celia123 Guest
    Since this is a political forum, does it have any politicians as members? Are there any pressure groups on here and has being here helped them?
    Thanks
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  11. #11
    Midas's Avatar
    Midas is offline Chancellor

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    Quote Originally Posted by Celia123 View Post
    Since this is a political forum, does it have any politicians as members? Are there any pressure groups on here and has being here helped them?
    Thanks
    No, it doesn't, at least not as far as I'm aware - if there are they're keeping very well hidden! We're simply a political discussion forum for members of the public, although one or two individual members might have their own contacts.
    "High taxes don't redistribute wealth; they redistribute taxpayers" -- Arthur Laffer

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    Johnd is offline Junior Member

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    Hi All

    Their are quite a few viewing this post,
    We are here for 2 reasons the first is to get signatures to get the government to trial this drug LDN. So please after reading this tread if the politions don't come here lets go to them by signing the petition at www.ldnnow.co.uk.

    The second reason we are here is to let you all know in this forum about LDN and where you can find information about it

    Thanks

    John
    Last edited by Johnd; 09-09-2009 at 08:44 PM. Reason: typo

  13. #13
    Johnd is offline Junior Member

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    Finaly LDN Hits the papers you can read all about it HERE Please keep those signatures comming www.ldnnow.co.uk

    John

  14. #14
    Johnd is offline Junior Member

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    Hi All

    Thank you for your support on this Forum, Our Petition to No.10 has hit 10,000 signatures

    John

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    Jayne Crocker is offline Junior Member

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    Just an update to let everybody know that we have a number of MPs, AMs and MSPs now supporting and backing our campaign.

    The two taking the lead on this are Stephen Crabb MP and Nia Griffiths MP. Both of whom are now actively involved with working with health ministers re trials for LDN and working with NICE.

    We have reached over 10,000 signatures but would like to get to 12,000 signatures so if any of you can help and support our petition to the Govt., we'd greatly appreciate it Petition to: use funds from the NHS budget to undergo trials for Low Dose Naltroxene. | Number10.gov.uk

    Many thanks

  16. #16
    Johnd is offline Junior Member

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    Hi All

    Now everybody has a chance to get Trials off the ground. The Scottish Parliament allow outsiders to sign their Petition so please sign HERE

    Thanks
    John

  17. #17
    Johnd is offline Junior Member

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    Quote Originally Posted by Jayne Crocker View Post
    Just an update to let everybody know that we have a number of MPs, AMs and MSPs now supporting and backing our campaign.

    The two taking the lead on this are Stephen Crabb MP and Nia Griffiths MP. Both of whom are now actively involved with working with health ministers re trials for LDN and working with NICE.

    We have reached over 10,000 signatures but would like to get to 12,000 signatures so if any of you can help and support our petition to the Govt., we'd greatly appreciate it Petition to: use funds from the NHS budget to undergo trials for Low Dose Naltroxene. | Number10.gov.uk

    Many thanks
    12,706 signatures with only 36 hours to go,

  18. #18
    Johnd is offline Junior Member

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    Thanks for all your help

    Hi All

    The UK petition finished last week with 13,026 signatures which was great. The 1st of December is a massive day for us all. We have one group facing the Scottish Parliament to speak about LDN for 3 minuets and then they have to answer questions from the Committee.

    At 4pm Dr Chris and Jayne are officially handing in the petition to 10 Downing Street and should make the news. This is a historic moment for all the people who have fought over the years to bring LDN under the spot light. We really hope that the least we achieve tomorrow is to let thousands more know about this cheap and worthwhile drug

    John

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